Monthly Archives: September 2011

Healthier, Day by Day

I’m not healed yet, but I’m on the upswing. With cervical spinal stenosis, neck trauma, plus an ulcerative colitis flare up due to antibiotic use, I’ve felt awful since June, but am really pleased with recent progress. Three weeks ago I did a 1500-egg Trichuris Trichiura whipworm top-off dose. It’s a larger number than most experts would recommend (I would have taken 1000 if it were possible to split the contents of the vial), but everyone reacts individually to helminthic therapy, and I have had only mild side effects in the past.

This time around, vague abdominal discomfort and mild diarrhea were the worst of it. I only took 5 to 10 mg of hydrocortisone for the first 5 days, as a precaution, which is basically a physiological dose, about half what my body would produce in a day. After that, I took Zyrtec at night, on and off for about a week, and only when necessary. The goal here is to be drug-free! I’ve also supplemented with 3 mg of melatonin, which has helped me sleep.

Since I’ve got stenosis and degenerative changes to my neck, which has probably affected my autonomic nerve, it’s hard to know if the insomnia is related to whipworm or caused by purely biomechanical, neurological issues. My hunch is whipworm have increased my eosinophils a bit and caused a temporary nervous tension (different from anxiety, it’s more physical) during the day, resulting in sleep disturbances at night. Note the following document here. However, keep in mind the insomnia started, and was at its worst, when my neck was injured back in June.

Here’s the good news: starting two days ago, my dysautonomia seems to have improved. My mood is better, I didn’take any Klonopin yesterday (medication prescribed for transient hypertension after the spinal injury), and I woke up feeling more rested. What caused the change? I’m saturating with VSL#3 probiotics, am eating a very low carb, sugar and grain-free diet, having twice-weekly chiropractic adjustments, using cervical traction devices to undo kyphois, and… getting regular exercise. Yes, exercise! My orthostatic intolerance has improved dramatically, to the point where I can now stand for an hour or more, and ride an upright exercise bike for 40 mins at a time. It was merely two months ago I was bed-bound, hardly able to walk or stand, and unable to ride the bike for even 5 or 10 minutes, so the progress is nothing short of incredible.

Two days ago I was having another blood pressure spike, an ongoing, daily issue for me related to high catecholamine levels. I may have hyperadrenergic POTS , but require further testing for diagnosis. Anyway, these attacks usually last for a few hours, but this episode eased up after only 30 minutes. Then suddenly I felt a familiar, deep sense of calm, much like my initial HT “bounce” back in early May, 2011, for a blissful 15 minutes. Is this the “worm magic” returning? Relaxation this deep is unique to my helminthic therapy, it’s ground-breaking and wonderful, and one reason I have come to believe in the “old friends” and hygiene hypotheses.

Thinking back, I’ve probably had low-level POTS for years, and at the time I thought it was just allergies. Cervical stenosis, likely to be congenital in my case, and neck trauma from computer use, may have contributed. But there’s also a potential mast cell component to POTS. By addressing the autoimmune aspects with helminthic therapy, I hope to conquer the allergic/immunity side, while addressing the degenerative, outward changes with neck traction, stretching, and gentle chiropractic adjustments.

All I care about is getting better, and without resorting to pharmaceuticals like Klonopin, when I can use a holistic approach instead. Positive trends gather their own momentum: laughter, love, community, happiness and connectedness — it’s all obviously part of health. My goal is to heal my body enough that I don’t even need to think about it anymore, and I can focus instead on enjoying life. Simple enough!


More Whipworm for Ulcerative Colitis Flare

My gut has been doing incredibly well ever since starting helminthic therapy back in late April, 2011. On August 8th I had to take Levaquin antibiotics for 7 days, and this “stunned” my worms enough that they no longer were providing anti-inflammatory benefits. Three days ago I noticed the first hint of an ulcerative colitis flare: a little mucous, some heat in my left abdomen around the descending colon. Sure enough, a day later I had a slight bit of blood on the TP. Those who suffer from UC know all about this. It’s when you start trying to decide how best to get rid of the inflammation.

In my case, I’ve had good luck with dietary changes, but only for maintenance. The “big gun” of a decadron IV in the hospital works, as does Imuran, but each of these meds have horrid side effects. And with “dysautonomia” now affecting me, who knows how I would react, even if taking a small dose of prednisone.

So I started thinking about that 1500 whipworm top off dose in my fridge. Trichiura Trichuris to my rescue? I downed all 1500 in one gulp. If my immune system needs a “suitable target” for a distraction, I’ve certainly given it that. Speaking of, over the last 10 years, the luckiest I ever got was catching a cold of some sort while I was flaring. It was enough to take the immune attack off my gut, and focus it on the “bug” instead. Here it is almost week 20 after my first inoculation, and I’m aiming for a similar response with this 2nd dose of helminthic therapy.

In an ideal world I would have had a spare vial of Necator Americanus hookworm, and inoculated with those instead. I think my body tends to get along with them a bit better than the TT whipworm, but I have no solid proof of that, only a hunch. Anyway, so it goes — we work with what we’ve got. Now I’m pondering the coming wave of side effects. Since my body already knows these critters, having taken 500 of them in late April, I don’t anticipate the same intense reaction, but time will tell.

I’m hoping this latest batch of “old friends” keeps me healthy until the initial round (55 hookworm and 500 whipworm) perk up from the antibiotics. It usually takes about 6 to 8 weeks, so they should all be “online” and laying their eggs again by October 15th. Meanwhile, goooo, worms. :-)


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