Hyperadrenergic Postural Orthostatic Tachycardia Syndrome

What a mouthful. I’ll say it again: Hyperadrenergic POTS. According to one cardiologist I spoke with recently, who sees a lot of similar cases, this is what I may have. Some blood work was done 3 days ago and I am heading off to see another cardiologist as soon as my health plan authorizes it. This feels like progress. My primary goal now is to control the blood pressure spikes, which tend to happen most often when I am under physical or emotional stress.

I sense I’ve had “hyper POTS” most of my life, and it has flared up at various times, usually after an emotional shock, like the death of a parent, friend, etc. This last time, 7 weeks ago, it appeared to get worse after the neck injury and subsequent chiropractic adjustment that made it hard for me to walk, type, etc. Now the neuropathy in my extremities has resolved, for the most part, but one neurologist I’m seeing thinks my autonomic nerve is still “bruised” by that trauma.

Yesterday, I did my first session (19 more to go, over the next 10 weeks) with the LENS neurofeedback system. It didn’t cure me overnight, but I do feel remarkably better. My mind has been clearer, brighter, with an increase in short term memory and a more upbeat mood. I’m looking forward to how this progresses. Even if all it does is reduce my symptoms and allow me to go back to a normal, slightly “potsy” life, that would be wonderful.

How does this all relate to the helminthic therapy? In my opinion, the HT was making it all a lot better. Between weeks 7 and 9 I felt great. Better than I had in years — calm, relaxed, focused… healthy. What appears to have upset the apple cart was the biomechanical failure of my neck. Oops!

Some research indicates POTS may be triggered by these types of events, but have an autoimmune component too, much like MS, chronic fatigue syndrome, etc. I’m holding out hope once my hookworms and whipworms are ready to give me longer term benefits, the POTS will improve due to the “worm magic”. Meanwhile, my gut is doing really well. Despite being on Levaquin for a puncture wound in my finger (1 week ago, and 3 days left of the antibiotics), so I would say this bodes very well for the future.

Gooooooo, worms..!

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3 thoughts on “Hyperadrenergic Postural Orthostatic Tachycardia Syndrome

  1. Hi. I read about the lens treatment and the worm?? I don’t understand how the lens works but would like to know what kind of dr does this and how it helps. I have pots and would like some help .

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    • the LENS neurofeedback system sends several pulses of low level signal into the brain to optimize electrical function. i had several treatments and liked how it made me feel, but financially i wasn’t able to continue it. i’ll probably try it again in the future when i can afford it. based on my experience, it wouldn’t be my first line of therapy for POTS, IBD, or anything else i’m hoping to heal, but it would be part of the tool box. i wish you luck getting better!

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  2. Pingback: Chronic Fatigue & the Gut-Neck Axis | GettingHealthierNow

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