Autonomic Dysfunction

I’m still waiting to get some tests done — A brain MRI with contrast, an EEG, and flexion/extension xrays of my cervical spine to see if certain postures create greater narrowing of the spinal channel or impinge on root nerves. Meanwhile, I’m continuing to have these “attacks”, and they appear to be autonomic nerve-related: neuropathy in my face and hands, tingling in the top of my head, profuse sweating, extreme stuffy nose, high blood pressure spikes, dizziness, tinnitus, and a sensation in my body and mind like the onset of a seizure. Oh, and all of this makes me a bit anxious. One neurologist prescribed a sedative to abort them, which seems to work, but so do mega doses of vitamin C, so I’m trying to go as drug-free as I can when managing it.

What sets them off appears to be biomechanical. Last night all it took was sitting in front of the computer and shifting my weight slightly. Then I felt something slip, up high around C2 in my cervical spine, a clicking sensation was audible, then the attack started. No pain, just a lot of weird symptoms, including diarrhea. It’s as if my bowels don’t have a neural connection when this chain of events takes place. Sometimes I’m unable to even initiate peristalsis, and that’s a little spooky.

So what does all of this have to do with helminthic therapy? I see a strong potential connection, if I turn out to be one of the lucky people who get long term benefits. Apparently, many ulcerative colitis sufferers, even if they are currently in remission like me, can develop symptoms of autonomic dysfunction, or AD. If that’s the case, and if the helminths can keep my UC in remission, I’m willing to bet they’ll also calm the inflammation in my central nervous system. The fact that HT has been documented as effective against MS, where healing demyelination is the goal, perhaps if there’s an autoimmune component to my autonomic dysfunction I can find relief, too.

Right now I’m exploring the possibilities, and I’ll know a lot more with test results. When I look back over how my autoimmune issues have developed, this neurological component (high sympathetic state)  is something I’ve been coping with for a good part of my life. These most recent symptoms feel more like a progression from that early point, something where a low threshold was breached, rather than any isolated development. That gives me a lot of hope it can be reversed. Go, worms!

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Cervical Spinal Stenosis?

We shall see, but (ulcerative colitis and some food allergies aside) I think the true cause of years of my health problems is about to be revealed. I go to my doc  in a few days and will get an MRI done to assess what’s going on with my neck. At this point it appears the most intense “allergic reactions” I thought I was having to the HT were actually nerve pain and respiratory symptoms emanating from my cervical (upper) spine. Wearing a foam neck support for a few days has helped a lot, especially as a diagnostic tool. I was intrigued to read there even seems to be a connection between TMJ and cervical spine injury.

My chiropractor suggested I do some imaging studies, and thought a narrowing of the channel for the spinal cord in the my neck, or “cervical spinal stenosis”, might be the culprit: nerve pain in extremities, and muscle weakness, plus low blood sugar episodes, tinnitus, anxiety, and poor muscle coordination at times. Even my “exercise intolerance” may be related, since the movement of walking, and especially running, aggravates this fragile part of the body. In my case, a few minutes of brisk walking was enough to trigger a very stuffy nose, and an asthma-like attack, which would make my heart race. A cold sweat often followed.

Vitamin C worked as a powerful medicine for this “worm flu” I thought I was having, due to its anti-inflammatory qualities. I can confirm it still works, and for the nerve issues, because when the pain and other symptoms are at their worst, the same moderately high doses of vitamin C (five to ten 1,000 MG tablets) clear it up quickly.

From what I can gather now, the only side effects of mine that appear related to the helminthic therapy is some diarrhea (with attendant dehydration), and fatigue. Neither appears totally resolved yet, at this, day 69, but it’s much improved from a month ago.

If I’m lucky, maybe the HT will help reduce inflammation in my neck on an ongoing basis. During my bounce, in week one post-hookworm and whipworm inoculation, I felt incredibly good, and was quite active. So let’s go, worms. Onward and upward!

The Fog of Worm — Week 7.

As luck would have it, a week ago, that glorious day of my last entry, was the high point thus far. A brief triumph for harmony, between a man and his helminths. All subsequent days have been filled with fatigue, GI discomfort, and various other aches and pains. Throughout it all I’ve been trying (and usually succeeding) to stay in motion, eat decent meals, push fluids and get plenty of rest. Tonight, sleep is elusive, as my stomach hurts too much to drift off.

But when I strip away the discomfort, I can still see glimpses of huge progress. For example, here i am celebrating at least 5 weeks of diarrhea. Why on earth is this a positive? Well, back in the olden days when I was suffering from active UC, just a few days of running to the can would have triggered a bloody mess of inflammation that ultimately would lead to hospitalization. The last time I flared up was a year ago, due to food poisoning in a restaurant. It took 3 days for me to flare, get a systemic infection, and by the time I landed in the ER I had a temperature of 104 and nearly croaked. Thanks for the Levaquin, doc! Now that I’m doing helminthic therapy, I seem capable of withstanding intestinal contortions of Olympic proportions. No bleeding, no inflammation at all. This is most impressive.

And despite fatigue that makes crawling out of bed in the morning pretty tough, I’ve got a surprising amount of endurance on the treadmill, or walking around my neighborhood. In fact, it feels like the more I move around, the more groovy worm secretions are coursing through my system, easing my non-transient aches and pains. For instance, I injured my knee in a motorcycle accident, and this has plagued me for years. During my “bounce” (week 1, post-inoculation) the pain disappeared, and after returning slightly during the peak side effects phase, it’s almost entirely gone again.

Nasal congestion is primarily resolved, too, once I wake up, and my lungs are perfectly clear — no asthma symptoms any more. Amazing, really. And the Happy Helminth mental boost is there, too, despite the daily grind of worm flu — depression and anxiety are now best identified by their absence. In moments, I even feel echoes of last Monday’s giddiness, but for shorter bursts. So I lay here feeling stoic, glad to have my new “old friends”. It’s becoming quite clear this is merely a waiting game now.